Advances in the genome sciences are enabling the creation of new models of health care as well as a huge array of highly specific diagnostic tests and therapeutics. As one of the most profound scientific revolutions in history, genomics has had a major impact on society as well as health care. Addressing the challenges of the Genome Revolution requires careful consideration of privacy and ethical issues. Scholarly research on these issues can help shape new legal and policy frameworks to incorporate genomics into everyday life.
Ethical, Legal, and Social Issues
in Genomic MedicineBiobanks
Cloning
Direct-to-Consumer Genetic Testing
Gene Patenting
Genetic Discrimination
Genetics Education
Genetic Privacy
Genetic Testing Oversight
Genetic Information in Electronic Health Records
Human Subjects Protections
Personal Genomics
Pharmacogenetics
Public Access to Genetic Testing
Race in Genomics and Society
Reproductive Genetics
Founded in 2000, the Duke Institute for Genome Sciences & Policy (IGSP) is a university-wide initiative devoted to advancing the Genome Revolution and addressing its broad implications for health and society. Visit the IGSP Web site to learn more and to read the latest opinions and editorials by Duke genomic and personalized medicine experts.
Interdisciplinary scholars at Duke conduct empirical social science research and explore the policy and social issues in genomics. The IGSP’s Genome Ethics, Law & Policy houses some of these researchers dedicated to the study of policy and societal issues related to genomics and personalized medicine.
You can learn more about the policy, legal and ethical issues in genetic research from the National Human Genome Research Institute of the National Institutes of Health.
Learn more about the impact of the Genetics Non-Discrimination Act (GINA) of 2008 from the National Coalition for Health Professional Education in Genetics.
